The European Federation of Neurological Associations [EFNA] is an umbrella group representing pan-European neurology patient groups.
Our slogan ‘Empowering Patient Neurology Groups’ encapsulates our goals as an Association. We strive to add capacity to our members – allowing them to be the most effective advocates possible in their own disease specific areas.
EFNA embraces the concept of Partnership for Progress – working at a high level with relevant stakeholders from the fields of policy, medical, scientific/research, industry, patient partners and other key opinion leaders.
A better quality of life for people in Europe living with a neurological disorder.
- To influence policy makers and legislators in Europe (and particularly in the European Union) to prioritise resource allocation to reduce the burden for people living with a neurological disorder.
- To communicate with our members to achieve positive change and to ensure that our actions both represent and provide added value to their own concerns and activities.
- To establish strong partnerships and alliances with relevant stakeholders in the scientific, clinical, political and corporate arenas to help us to reach our goals – partnership for progress.
- Trustworthiness and transparency – we will be open, honest and ethical in all we do.
- Respect and democracy – we respect one another’s differences and contributions.
- Sustainability – we will make best use of our resources to bring about changes that produce permanent benefits for our members and will plan our activities to ensure EFNA’s future.
EFNA’s aims are to improve the quality of life of people with neurological disorders, their families and carers by working in four strategic areas:
Advocacy – Empowerment – Awareness – Engagement
GOAL 1: ADVOCACY
To raise awareness and generate patient based evidence of the burden and impact of neurological disorders; increasing priority given to neurology by policy and decision makers and by health care providers.
GOAL 2: EMPOWERMENT
To ensure that our member organisations are empowered and supported to be active in advocating for neurology, and provided with the opportunities and channels to do so effectively.
GOAL 3: AWARENESS
To promote public awareness and understanding of neurological conditions; eliminating the associated prejudice/stigma.
GOAL 4: ENGAGEMENT
To work closely with our partners and relevant stakeholders in the field to ensure that the neurology patient perspectives and preferences are represented and considered in policy and decision-making – ensuring a multi-stakeholder approach, with patients taking the lead.