EFNA Membership

EAMDA is an international non profit association whose member organisations work together to give people with NMD as normal a life as possible. They do this by building a strong organisation that represents people with NMD throughout Europe.

euro-ATAXIA is a non-profit, non-governmental, European organisation representing people in Europe with ataxia. Its objectives are to promote interaction between Scientists and Medical Doctors; communicate the latest medical research findings including clinical trials to the members of euro-ATAXIA; co-operate with or be affiliated to other national and international organisations and institutions that promote welfare of individuals affected by a physical disability and raise the awareness of ataxia among medical and non-medical people.

European Headache Alliance (EHA) is a Patient umbrella group which aims to coordinate the work of national patient organisations to raise awareness of headache related issues throughout Europe, promoting early diagnosis and access to appropriate treatment.

The purpose of EHA is to represent the views and needs of headache patients across Europe to the European Union and other relevant institutions with the aim of relieving the burden of headache.

      

The International Huntington Association (IHA) is a federation of national voluntary health agencies that share common concern for individuals with Huntington's Disease and their families. Each agency promotes lay and professional education, individual and family support, psycho-social, clinical and biomedical research, and ethical and legal considerations related to Huntington's Disease in its respective country.

The European HD Network provides a platform for professionals and people affected by Huntington's Disease and their relatives to facilitate working together throughout Europe.

The EMSP is a non-political, non-religious or non-philosophical affiliation and non-profit making charity. The purpose of the association is to exchange and disseminate information relating to multiple sclerosis and deliberate upon and consider all questions, problems and measures, legislative or otherwise; encourage research of all kinds that is appropriate to multiple sclerosis through medical and other associations; promote the development of joint action programs with the participation of national MS societies in Europe and act as a focal point for liaison with the institutions of the European Union (EU), the Council of Europe and other European organizations.

The European Network for Research on Alternating Hemiplegia (ENRAH) brings together patients and their families seeking support and improved healthcare for those suffering from Alternating Hemiplegia in Childhood (AHC). ENRAH collaborates with all patients, patient organisations, research groups, and other interested parties across Europe in order to share experiences, concerns, information, knowledge, understanding, and tools that assist AHC patients and their families.

The European Polio Union (EPU) is a European umbrella organisation for national organisations that support people who have had polio and for people that are currently coping with Post Polio Syndrome (PPS). The EPU aims, by bringing all those organisations together, to strengthen their force, to learn from each other and to help each other. In some countries in Europe the knowledge and treatment of PPS is (much) better than in others and the aim is to make this more equal all over Europe.

The EPDA is the only European Parkinson's disease umbrella organisation. It represents 45 member organisations and advocates for the rights and needs of more than 1.2 million people with Parkinson's and their families.

By working with its 45 member organisations  (MOs) – who represent the needs of individual people with Parkinson's and their families at a national level – the EPDA aims to:

• ensure equal and timely access to prompt diagnosis and good-quality Parkinson's care across Europe by raising standards and reducing existing inequalities
• increase public awareness of Parkinson's as a priority health challenge
• help reduce stigma and remove discrimination against people with Parkinson's
• support the development of national Parkinson's organisations throughout Europe.

The International Brain Tumour Alliance (IBTA) was established during the conference of the World Federation of Neuro Oncology held at Edinburgh (UK) in May 2005.

It seeks to be an alliance of the support, advocacy and information groups for brain tumour patients and carers in different countries and also includes researchers, scientists, clinicians and allied health professionals who work in the area of brain tumours.

The Motor Neurone Disease (MND) Association is the only national organisation in England, Wales and Northern Ireland dedicated to the support of people with MND and those who care for them.

SAFE is a non-profit-making organisation that represents a range of patient groups from across Europe whose mutual goal is to drive the stroke prevention up the European political agenda and prevent the incidence of stroke through education. Its vision is to work towards greatly decreasing the number of strokes in Europe and that all who are impacted, receive the help and support they need. SAFE engages in activities such as campaigning, education and encouraging research, to improve of the quality of life of stroke survivors, their families and carers.