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ARCHIVE

“We are not alone. We are not different.”

A workshop for Polish patient organisations representing those affected by brain disorders took place in Warsaw on December 1st. This Training Initiatives for Neurology Advocates […]

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European health community calls on the EU and UK to prioritise patients as crunch Article 50 decision approaches

  EFNA, as part of a group of organisations representing patients, healthcare professionals and the health care industry have today called on the EU and […]

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EFNA-commissioned report on neurology patient involvement in HTA shows it is difficult for patients to influence HTA decisions in many countries

An EFNA-commissioned mapping exercise of neurology patient engagement in Health Technology Assessment, shows uncertainty in how the provision of a patient perspective impacts final decisions. […]

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‘How to become your own advocate?’ – TINA is coming to Poland

Workshop for Polish patient organisations representing those affected by brain disorders Warsaw, December 1st Healthcare design and delivery should be organized, first and foremost, around […]

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My Voice Matters! – Integrating patient’s preferences in the healthcare agenda

  From the 21-24 November 2017 EFNA participated in the ‘My Voice Matters’ exhibition at the European Parliament in Brussels. The exhibition was an initiative […]

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European Alliance for Restless Legs Syndrome presenting outcome of Value of Treatment Study in Prague during World Sleep 2017

The World Sleep Conference was held in Prague from October 7-11, 2017. 2,700 sleep specialists from all over the world attended the conference, during which […]

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Global Huntington’s Disease Patient Advocacy Organisations Unite to Form Huntington’s Disease Coalition for Patient Engagement (HD-COPE)

The European Huntington Association (EHA), Huntington’s Disease Society of America (HDSA) and Huntington Society of Canada (HSC) are proud to announce the formation of the […]

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Share your opinions & experiences of rare disease research

Rare Barometer Voices– the EURORDIS survey tool that collects the opinions of rare disease patients, families and carers, is now open to participants around the […]

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Ensuring equitable access to high-quality treatment in brain, mind and pain disorders

The next meeting of the MEP Interest Group on Brain, Mind and Pain will take place on November 22nd at the European Parliament in Brussels. […]

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TINA Workshop for Spanish Patient Organisations representing those affected by brain disorders

Understanding and Influencing Healthcare Decision-Making Focus on: Health Technology Assessment Workshop for Spanish Patient Organisations representing those affected by brain disorders “Campus Diversia”, Yátova, Valencia, […]

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