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Adam Kalinowski – my work as a Dystonia Patient Advocate

News

Hi, my name is Adam. I am 34 years old and have suffered from dystonia since 2006. Dystonia is a rare neurological movement disorder that […]

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Adam Kalinowski and Barbora Jones at EAN 2018

EFNA General Assembly takes place at EAN 2018 Congress, Lisbon

Uncategorized

Last week we attended the 4th European Academy of Neurology (EAN) Congress in Lisbon, along with more than 6700 neurologists! Once again, EFNA took this […]

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MyBrainNet: BMP Award winner

MyBrainNet by Dystonia Europe among winners of the BMP Grant

News

EFNA member association Dystonia Europe was among the winners of the Brain, Mind, and Pain Patient-Centred Innovation Grant, announced on Wednesday in Brussels. The €30,000 […]

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Joke Jaarsma and Ann Little

A Change of Presidency at EFNA – Farewell Ann and welcome Joke!

News

Our recent General Assembly in Lisbon saw a change to the EFNA Board structure. Due to growing commitments within her own organisation (the International Bureau […]

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‘My role as an epilepsy Fieldworker’ – Barbora Jones, Epilepsy Connections

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Barbora Jones is a Fieldworker with Epilepsy Connections. Barbora recently traveled to Lisbon to assist EFNA in their work at the EAN Congress 2018. Here […]

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‘Health, Wealth and Workability; MS and Young People’ – Helen Chandler

News

Earlier this month, I traveled from Hampshire in England to Lisbon, Portugal to attend the EAN’s annual Congress representing the EMSP on behalf of EFNA. […]

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‘Value – Patient Preferences and Perspectives’; Pan-European workshop in Lisbon

News, TINA

EFNA’s 2018 pan-European workshop took place at the Champalimaud Foundation in Lisbon on April 17th and 18th under the topic of: Value – Patient Preferences […]

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EFNA participation in PATHWAYS Project

News

The final conference of the PATHWAYS project took place on March 20th, 2018 at the European Parliament in Brussels. PATHWAYS is an acronym of: “Participation […]

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EFNA and APAN hold event on ‘Brain Health’ in Bucharest to celebrate Brain Awareness Week

News, TINA

During the period of 12-18 March 2018 Brain Awareness Week is celebrated at international level. Events are organised around the world, with the aim of […]

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EFNA launch Survey of Young Europeans with Neurological Conditions

News

During Brain Awareness Week 2018, The European Federation of Neurological Associations (EFNA)  launched a Survey of Young Europeans with Neurological Conditions: https://www.surveymonkey.com/r/EFNA-YS     The […]

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