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NEWS

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Upcoming meeting of the Brain, Mind and Pain MEP Interest Group to focus on young people

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How can the EU #MakeWorkWork for young people affected by brain, mind and pain conditions? When: 21st February 2018, 12.00 – 14.00hrs Where: Room A5 […]

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“We are not alone. We are not different.”

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A workshop for Polish patient organisations representing those affected by brain disorders took place in Warsaw on December 1st. This Training Initiatives for Neurology Advocates […]

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European health community calls on the EU and UK to prioritise patients as crunch Article 50 decision approaches

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  EFNA, as part of a group of organisations representing patients, healthcare professionals and the health care industry have today called on the EU and […]

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EFNA-commissioned report on neurology patient involvement in HTA shows it is difficult for patients to influence HTA decisions in many countries

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An EFNA-commissioned mapping exercise of neurology patient engagement in Health Technology Assessment, shows uncertainty in how the provision of a patient perspective impacts final decisions. […]

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‘How to become your own advocate?’ – TINA is coming to Poland

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Workshop for Polish patient organisations representing those affected by brain disorders Warsaw, December 1st Healthcare design and delivery should be organized, first and foremost, around […]

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My Voice Matters! – Integrating patient’s preferences in the healthcare agenda

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  From the 21-24 November 2017 EFNA participated in the ‘My Voice Matters’ exhibition at the European Parliament in Brussels. The exhibition was an initiative […]

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European Alliance for Restless Legs Syndrome presenting outcome of Value of Treatment Study in Prague during World Sleep 2017

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The World Sleep Conference was held in Prague from October 7-11, 2017. 2,700 sleep specialists from all over the world attended the conference, during which […]

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Global Huntington’s Disease Patient Advocacy Organisations Unite to Form Huntington’s Disease Coalition for Patient Engagement (HD-COPE)

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The European Huntington Association (EHA), Huntington’s Disease Society of America (HDSA) and Huntington Society of Canada (HSC) are proud to announce the formation of the […]

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Share your opinions & experiences of rare disease research

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Rare Barometer Voices– the EURORDIS survey tool that collects the opinions of rare disease patients, families and carers, is now open to participants around the […]

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Ensuring equitable access to high-quality treatment in brain, mind and pain disorders

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The next meeting of the MEP Interest Group on Brain, Mind and Pain will take place on November 22nd at the European Parliament in Brussels. […]

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