In 2016, EFNA launched its Training Initiatives for Neurology Advocates [TINA].
For many years EFNA has run workshops on Health Technology Assessment and, lately, Pharmaceutical Policy – Pricing, Access and Reimbursement at the London School of Economics.
However, feedback from participants indicates that patients now need to be equipped to use the theoretical knowledge gained on these processes, and the wider research and development cycle, in a more practical way.
For example, through the development of communication, advocacy and campaigning skills and the generation of patient evidence or patient reported outcomes.
EFNA is also eager to ensure that our training activities are targeted to the neurology sector and the specific obstacles faced therein.
Working with other stakeholders in the field e.g. neuroscientists, neurologists, industry, regulators and payers is part of our envisaged way forward.
Under TINA, EFNA plans to run at least three workshops annually for neurology patient advocates at both a pan-European and National level.
Get in touch if you are interested in:
- Suggesting your country as a location for a national workshop and supporting us locally
- Suggesting a topic for an upcoming workshop
- Participating in an upcoming event
- Coming on board as a sponsor
- Any other aspect of the initiative
Bucharest, July 21st 2017
Science, Storytelling and Social Affairs
Find out more here
There will be two further national workshops in Winter 2017 in Poland and Spain. Please check back in September for more information, or send us your name/organisation and we will get back to you once registration opens with all the details you will need!
Brussels, May 2017
Effective External Ambassadorship
Download slide deck here
Dublin, October 2016
Putting the Neurology Patient Perspective at the Heart of Research and Beyond
Focus on Patient Generated Evidence and Patient Relevant Outcomes
Download presentations here
Utrecht, The Netherlands – November 2016
Bucharest, Romania – October 2016
This initiative has been made possible through unrestricted educational grants from the below sponsors, who have had no direct influence over the final agenda – including the selection of topics, speakers, case-studies, etc. The objective of this meeting is to upksill neurology patient advocates to participate in the R&D process and beyond – and the outcomes will be disseminated in an appropriate manner to allow for this objective to be met.
Thanks to Biogen, Merck Serono, MSD, Novartis, Pfizer, Sanofi-Genzyme, Teva and UCB.