ARCHIVE

ARCHIVE

Nadia Malliou

Living with an undiagnosed neurological condition for almost 30 years

Patient Perspective on Brain Health Series Living with an undiagnosed neurological condition for almost 30 years ‘I wish I could have been stronger and empowered […]

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Jan Bodenbach - Dystonia Patients Perspective

My Dystonia Story – Jan Bodenbach

Patient Perspective on Brain Health Series My Dystonia Story by Jan Bodenbach It was a cold Friday night when my body began to take away everything […]

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joke jaarsma

Forgotten Happiness – Living with Restless Legs Syndrome

Patient Perspective on Brain Health Series Forgotten Happiness – Living with Restless Legs Syndrome I have become used to this, am lying in bed kicking […]

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Gary Boyle – living well with Parkinson’s

Patient Perspective on Brain Health Series Living Well With Parkinson’s Disease I am not entirely sure when it started – that is the thing about […]

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BAW 2023 EFNA Campaign Feat Img

Brain Health Day 2023 – Neurological Patient Issue Awareness Campaign

Brain Awareness Week 2023 EFNA Patient Advocacy Campaign   This year we marked Brain Awareness Week by running a social media campaign to raise awareness […]

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Eva Frostell - Living With Myasthenia Gravis

Living with a rare neurological disease – Myasthenia Gravis – Eva Frostell

Patient Perspective on Brain Health Series My story of living with Myasthenia Gravis (MG), a rare neurological disease The European Union considers a disease as […]

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Leda Bresnov - NMOSD - Rare Neurological Disease

NMOSD – A Rare Autoimmune Disease Personal Story – Leda Bresnov

Patient Perspective on Brain Health Series NMOSD – A Rare Autoimmune Disease Personal Story   In 2018 without warning, apart from numbness in my fingers […]

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patient voice

OECD puts patients’ voice and experience at the core of healthcare development and delivery

OECD puts patients’ voice and experience at the core of healthcare development and delivery; Important lessons can be drawn for the implementation of the neurological […]

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Harris Eyre

‘My migraines are a super power’ – Harris A. Eyre MD PhD

Patient Perspective on Brain Health Series The brain story of a migraineur neuroscientist “You may encounter many defeats, but you must not be defeated. In […]

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Economist Impact Study

The value of action: mitigating the global impact of neurological disorders

  An analysis of the Economist Impact study – The value of action: mitigating the global impact of neurological disorders, by EFNA’s Senior Policy Advisor, […]

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