Dystonia Day 2026: Watch the recording
Dystonia Day 2026 took place on 30 May in Malmö, Sweden. The full day event featured patient testimony and expert presentations from: Salvatore Caruso, Italy: […]
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Category: Member-News
International Bureau for Epilepsy Launches New Global Policy Advocacy Report at the 79th World Health Assembly
The International Bureau for Epilepsy (IBE) officially launched a new Policy Advocacy Report at the 79th World Health Assembly in Geneva; bringing the voices, priorities, […]
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New EMHA Migraine Scoring System is now available!
The European Migraine and Headache Alliance has launched a new Scoring System. This tool was created by a scientific committee to enhance communication between patients, society, […]
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Epilepsy and Rare Diseases: From Silos to Synergies
On December 2nd, 2025, IBE – together with the Spanish Epilepsy Federation [FEDE] – organised a meeting at the European Parliament, Brussels. The meeting – […]
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An EU Roadmap for Migraine
The SANT Committee of the European Commission has recently published a draft Work Programme which, for the first time, includes a report on a European […]
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2nd European Charcot-Marie-Tooth Specialists Conference announced: October 23 to 25, 2025
We have the pleasure to announce the 2nd European Charcot-Marie-Tooth Specialists Conference, Antwerp, Belgium, from October 23 to 25, 2025. This conference is a common […]
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Retina International commence research into the burden of retinal degenerative diseases
Retina International, a global patient-led organization dedicated to empowering those affected by retinal degenerative diseases, is leading a comprehensive research programme to better understand the […]
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Parliament Event Highlights Urgent Need for Action on Myasthenia Gravis
On 12 June 2025, EuMGA and MEP Tomislav Sokol hosted a high-level event at the European Parliament to address challenges faced by people with Myasthenia […]
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Let’s Talk MS: New episode out now
The latest episode of ‘Let’s Talk MS’, a podcast by the European Multiple Sclerosis Platform (EMSP), discusses the stigma and discrimination faced by people with […]
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The Huntington Academy Is Live – A New Era in HD Education Begins!
We’re thrilled to announce the official launch of Huntington Academy — a groundbreaking e-learning platform designed to empower informal and formal caregivers of people affected […]
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