My Story – Constant Reinvention
Patient Perspective on Brain Health Series My Story – Constant Reinvention by Brona Kearney I have a rare disease called Friedreich’s Ataxia (FA) which is […]
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Category: Patient Perspective
Even the Longest of Days Will Eventually Come to an End
Patient Perspective on Brain Health Series Even the Longest of Days Will Eventually Come to an End by Elisa Dibra I had my first seizure […]
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Living With the Unknown – Until Narcolepsy Finally Had a Name
Patient Perspective on Brain Health Series Living With the Unknown – Until Narcolepsy Finally Had a Name by Agata Zadora I was eighteen when […]
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Patients with ME cannot wait for a cure before the harm stops – Ona Albizu
For many years, I have lived with moderate/severe myalgic encephalomyelitis (ME). I was housebound and dependent on others for some basic activities of daily life. […]
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Managing Life with Young-onset Parkinson’s Disease – Nicole Thorpe
When I was diagnosed with young-onset Parkinson’s at age 39 my doctor told me not to tell anyone, especially my employer. The doctor’s main interest […]
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Unveiling the Invisible: A Working Visit to the European Parliament on Neurological Conditions
Article by EFNA’s Community Advisory Board Member Andra Bria Neurological conditions affect millions across the globe, yet many of their most pressing issues remain invisible […]
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Living with an undiagnosed neurological condition for almost 30 years
Patient Perspective on Brain Health Series Living with an undiagnosed neurological condition for almost 30 years ‘I wish I could have been stronger and empowered […]
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My Dystonia Story – Jan Bodenbach
Patient Perspective on Brain Health Series My Dystonia Story by Jan Bodenbach It was a cold Friday night when my body began to take away everything […]
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Forgotten Happiness – Living with Restless Legs Syndrome
Patient Perspective on Brain Health Series Forgotten Happiness – Living with Restless Legs Syndrome I have become used to this, am lying in bed kicking […]
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Gary Boyle – living well with Parkinson’s
Patient Perspective on Brain Health Series Living Well With Parkinson’s Disease I am not entirely sure when it started – that is the thing about […]
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