Disease Area: Ataxia

Hellenic Friedreich’s Ataxia Association

FAF (Friedreich Ataxie Förderverein e.V.)

Friedreich’s ataxia remains an incurable disease. To date, there is no effective treatment for the disease. Therapy is therefore limited to the symptoms. Our goal is to advance research and treatment of Friedreich Ataxia (FA)

DHAG (Deutsche Heredo-Ataxie Gesellschaft)

The German Heredo Ataxia Society e. V. (DHAG) is a nationwide active self-help organization for the ataxia disease. It is a registered, non-profit and charitable association.

CSC (Connaitre les Syndromes Cérébelleux)

Knowing Cerebellar Syndromes (CSC) is a national non-profit association, open to all, more particularly to people suffering from a cerebellar syndrome, their families and carers.

AFAF (l’Association Francaise de l’Ataxie de Friedreich)

The AFAF, French Association of Friedreich’s Ataxia , was created in 1980 and, since then, has been run and managed by volunteers, closely affected by the disease and who share the wish to help patients and facilitate the emergence treatments. It brings together more than 900 members. It relies on a scientific council and a medical and paramedical council, and ensures a partnership with other associations in France and around the world.

Foreningen for ATAKSI HSP

We are the nationwide association for people with the rare diagnoses of Ataxia or HSP as well as their relatives and other interested parties.

Association Belge de l’Ataxie de Friedreich (ABAF) 

Spierziekten Vlaanderen

Muscle Diseases Flanders is a volunteer organization that has been committed to the general well-being of people with a neuromuscular disorder (NMA) since 1987. Colloquially, this group of conditions is often referred to as ‘muscle diseases’.

Euro Ataxia

Euro-ataxia is an international non-profit association whose member organisations work together to help people with progressive ataxia lead their best life. We do this by […]