Disease Area: Dystonia

AMADYS

Created in 1987, AMADYS is a non-profit, general interest association , under the 1901 law, of people suffering from dystonia or hemifacial spasm. It brings together nearly 2,000 members including 80 delegates spread across France.

Suomen Dystonia-yhdistys ry

The purpose of the Finnish Dystonia Association is to provide information about dystonia as a neurological disease and to support people suffering from the disease and their loved ones.

Dansk Dystoniforening

Dystonia is the term for involuntary tension in the muscles, which can result in abnormal movements and positions of body parts and limbs. The neurologists estimate that there are approx. 3,000 who are affected by dystonia in Denmark. The Danish Dystonia Association is a nationwide interest organization for patients and their relatives.

Dystonie-rodina spolu, z.s.

HUBPP – Hrvatska Grupa Za Istrazivanje Distonije

Belgische Vereniging voor Dystoniepatiënten

Dystonia is a neurological disorder with a motor impact. The condition leads to abnormal muscle contractions, has many forms and is atypical due to a diversity of degrees of pain complaints.
The consequences in terms of well-being and work cannot be underestimated. The condition means a revolution in life plans, both for the patient and the family. The Belgian Association for Dystonia Patients wants to be a point of contact, information sharer and forum to break the social isolation and unfamiliarity of the condition.

Austrian Dystonia Society

The Austrian Dystonia Society (ÖDG) was founded by Ms. Christa E. Hafenscher at the suggestion and with the support of Mr. Univ. Prof. Eduard Auff […]

Dystonia Europe

Dystonia Europe is a non-profit organisation registered in Belgium and serving the needs of everybody with an interest in dystonia. The Dystonia Europe Vision is […]