EFNA Launch Survey on Stigma and Neurological Disorder

As part of our Brain Awareness Week 2020 activities EFNA has launched a survey on Stigma and Neurological Conditions:

The European Federation of Neurological Associations (EFNA) represents 20 European and International associations across a wide variety of neurological disease areas, such as multiple sclerosis, epilepsy, migraine and ADHD.

In 2018, EFNA conducted a survey of young people affected by neurological disorder, to assess the impact of these conditions on their lives. Stigma was identified as one of the biggest issues affecting respondents, after access to medication/treatment and isolation.

As a result, EFNA has decided to develop a new survey, delving deeper into this issue, exploring the areas where stigma is felt and the situations which give rise to it.

By identifying these areas EFNA can focus attention where it is most required and move to develop strategies that will combat stigma.


The purpose of this survey is to identify factors contributing to stigma against people living with neurological disorders in order to develop strategies that will help to combat it.


Stigma and discrimination occur when people are treated unfairly because they are seen as being different from others. This survey will explore how you have been affected by stigma due to living with a neurological disorder.

This survey is open to anyone who is living with a neurological disorder, resident in Europe. The survey is available in 8 languages and will remain
open until June 15th 2020.



Please share this information among your network and encourage their participation!

Take the survey here: