Hover over any marker to view the details of the organization. For a more detailed search by organization or disease area, use the listing search below.
Europe
CMT Austria
Charcot-Marie-ToothCMT-Austria is an interest group for patients with inherited polyneuropathy. (Charcot-Marie-Tooth syndrome, CMT syndrome for short)
European Association of Myasthenia Gravis Patients’ Associations (EUMGA)
RLS
European Alliance of Neuromuscular Disorders Associations (EAMDA)
Neuromuscular Disorders
European Patient Organisation for Dysimmune and Inflammatory Neuropathies (EPODIN)
Rare Immune-Mediated Peripheral
Iktic-Jetique Iktic Tourettevereniging België vzw Jetique Association Tourette Belge asbl
Tics and Tourettes
Belgische Vereniging voor Dystoniepatiënten
DystoniaDystonia is a neurological disorder with a motor impact. The condition leads to abnormal muscle contractions, has many forms and is atypical due to a diversity of degrees of pain complaints. The consequences in terms of well-being and work cannot be underestimated. The condition means a revolution in life plans, both for the patient and the family. The Belgian Association for Dystonia Patients wants to be a point of contact, information sharer and forum to break the social isolation and unfamiliarity of the condition.
Werkgroep Hersentumoren
Brain TumorDo you have a brain tumor yourself? Or does your partner or family member have a brain tumor? Do you have questions or are you anxious? The Brain Tumors Working Group provides you with very comprehensive information in a clear and understandable manner. Good information contributes to making the right decisions in consultation with your doctors and enables better and faster processing.
Spierziekten Vlaanderen
Ataxia, Charcot-Marie-Tooth, Neuromuscular DisordersMuscle Diseases Flanders is a volunteer organization that has been committed to the general well-being of people with a neuromuscular disorder (NMA) since 1987. Colloquially, this group of conditions is often referred to as ‘muscle diseases’.
Arbeitsgruppe zur Förderung von Personen mit ADHS (ADAPT)
ADHDADHD, ASC & LD Belgium supports neurodivergent people of all ages and their families. We work with teachers, schools, and other professionals. We provide information about neurodiversity — which includes ADHD, autism, dyslexia, dysgraphia, dyscalculia, and dyspraxia (developmental coordination disorder) — and comorbid conditions.
Iktic-Jetique Iktic Tourettevereniging België vzw Jetique Association Tourette Belge asbl
Tics and TourettesBelgische Vereniging voor Dystoniepatiënten
DystoniaDystonia is a neurological disorder with a motor impact. The condition leads to abnormal muscle contractions, has many forms and is atypical due to a diversity of degrees of pain complaints. The consequences in terms of well-being and work cannot be underestimated. The condition means a revolution in life plans, both for the patient and the family. The Belgian Association for Dystonia Patients wants to be a point of contact, information sharer and forum to break the social isolation and unfamiliarity of the condition.
Werkgroep Hersentumoren
Brain TumorDo you have a brain tumor yourself? Or does your partner or family member have a brain tumor? Do you have questions or are you anxious? The Brain Tumors Working Group provides you with very comprehensive information in a clear and understandable manner. Good information contributes to making the right decisions in consultation with your doctors and enables better and faster processing.
Spierziekten Vlaanderen
Ataxia, Charcot-Marie-Tooth, Neuromuscular DisordersMuscle Diseases Flanders is a volunteer organization that has been committed to the general well-being of people with a neuromuscular disorder (NMA) since 1987. Colloquially, this group of conditions is often referred to as ‘muscle diseases’.
Arbeitsgruppe zur Förderung von Personen mit ADHS (ADAPT)
ADHDADHD, ASC & LD Belgium supports neurodivergent people of all ages and their families. We work with teachers, schools, and other professionals. We provide information about neurodiversity — which includes ADHD, autism, dyslexia, dysgraphia, dyscalculia, and dyspraxia (developmental coordination disorder) — and comorbid conditions.
Iktic-Jetique Iktic Tourettevereniging België vzw Jetique Association Tourette Belge asbl
Tics and TourettesBelgische Vereniging voor Dystoniepatiënten
DystoniaDystonia is a neurological disorder with a motor impact. The condition leads to abnormal muscle contractions, has many forms and is atypical due to a diversity of degrees of pain complaints. The consequences in terms of well-being and work cannot be underestimated. The condition means a revolution in life plans, both for the patient and the family. The Belgian Association for Dystonia Patients wants to be a point of contact, information sharer and forum to break the social isolation and unfamiliarity of the condition.
Werkgroep Hersentumoren
Brain TumorDo you have a brain tumor yourself? Or does your partner or family member have a brain tumor? Do you have questions or are you anxious? The Brain Tumors Working Group provides you with very comprehensive information in a clear and understandable manner. Good information contributes to making the right decisions in consultation with your doctors and enables better and faster processing.
Spierziekten Vlaanderen
Ataxia, Charcot-Marie-Tooth, Neuromuscular DisordersMuscle Diseases Flanders is a volunteer organization that has been committed to the general well-being of people with a neuromuscular disorder (NMA) since 1987. Colloquially, this group of conditions is often referred to as ‘muscle diseases’.
Arbeitsgruppe zur Förderung von Personen mit ADHS (ADAPT)
ADHDADHD, ASC & LD Belgium supports neurodivergent people of all ages and their families. We work with teachers, schools, and other professionals. We provide information about neurodiversity — which includes ADHD, autism, dyslexia, dysgraphia, dyscalculia, and dyspraxia (developmental coordination disorder) — and comorbid conditions.
Iktic-Jetique Iktic Tourettevereniging België vzw Jetique Association Tourette Belge asbl
Tics and TourettesBelgische Vereniging voor Dystoniepatiënten
DystoniaDystonia is a neurological disorder with a motor impact. The condition leads to abnormal muscle contractions, has many forms and is atypical due to a diversity of degrees of pain complaints. The consequences in terms of well-being and work cannot be underestimated. The condition means a revolution in life plans, both for the patient and the family. The Belgian Association for Dystonia Patients wants to be a point of contact, information sharer and forum to break the social isolation and unfamiliarity of the condition.
Werkgroep Hersentumoren
Brain TumorDo you have a brain tumor yourself? Or does your partner or family member have a brain tumor? Do you have questions or are you anxious? The Brain Tumors Working Group provides you with very comprehensive information in a clear and understandable manner. Good information contributes to making the right decisions in consultation with your doctors and enables better and faster processing.
Spierziekten Vlaanderen
Ataxia, Charcot-Marie-Tooth, Neuromuscular DisordersMuscle Diseases Flanders is a volunteer organization that has been committed to the general well-being of people with a neuromuscular disorder (NMA) since 1987. Colloquially, this group of conditions is often referred to as ‘muscle diseases’.
Arbeitsgruppe zur Förderung von Personen mit ADHS (ADAPT)
ADHDADHD, ASC & LD Belgium supports neurodivergent people of all ages and their families. We work with teachers, schools, and other professionals. We provide information about neurodiversity — which includes ADHD, autism, dyslexia, dysgraphia, dyscalculia, and dyspraxia (developmental coordination disorder) — and comorbid conditions.
Iktic-Jetique Iktic Tourettevereniging België vzw Jetique Association Tourette Belge asbl
Tics and TourettesBelgische Vereniging voor Dystoniepatiënten
DystoniaDystonia is a neurological disorder with a motor impact. The condition leads to abnormal muscle contractions, has many forms and is atypical due to a diversity of degrees of pain complaints. The consequences in terms of well-being and work cannot be underestimated. The condition means a revolution in life plans, both for the patient and the family. The Belgian Association for Dystonia Patients wants to be a point of contact, information sharer and forum to break the social isolation and unfamiliarity of the condition.
Werkgroep Hersentumoren
Brain TumorDo you have a brain tumor yourself? Or does your partner or family member have a brain tumor? Do you have questions or are you anxious? The Brain Tumors Working Group provides you with very comprehensive information in a clear and understandable manner. Good information contributes to making the right decisions in consultation with your doctors and enables better and faster processing.
Spierziekten Vlaanderen
Ataxia, Charcot-Marie-Tooth, Neuromuscular DisordersMuscle Diseases Flanders is a volunteer organization that has been committed to the general well-being of people with a neuromuscular disorder (NMA) since 1987. Colloquially, this group of conditions is often referred to as ‘muscle diseases’.
Arbeitsgruppe zur Förderung von Personen mit ADHS (ADAPT)
ADHDADHD, ASC & LD Belgium supports neurodivergent people of all ages and their families. We work with teachers, schools, and other professionals. We provide information about neurodiversity — which includes ADHD, autism, dyslexia, dysgraphia, dyscalculia, and dyspraxia (developmental coordination disorder) — and comorbid conditions.
Iktic-Jetique Iktic Tourettevereniging België vzw Jetique Association Tourette Belge asbl
Tics and TourettesBelgische Vereniging voor Dystoniepatiënten
DystoniaDystonia is a neurological disorder with a motor impact. The condition leads to abnormal muscle contractions, has many forms and is atypical due to a diversity of degrees of pain complaints. The consequences in terms of well-being and work cannot be underestimated. The condition means a revolution in life plans, both for the patient and the family. The Belgian Association for Dystonia Patients wants to be a point of contact, information sharer and forum to break the social isolation and unfamiliarity of the condition.
Werkgroep Hersentumoren
Brain TumorDo you have a brain tumor yourself? Or does your partner or family member have a brain tumor? Do you have questions or are you anxious? The Brain Tumors Working Group provides you with very comprehensive information in a clear and understandable manner. Good information contributes to making the right decisions in consultation with your doctors and enables better and faster processing.
Spierziekten Vlaanderen
Ataxia, Charcot-Marie-Tooth, Neuromuscular DisordersMuscle Diseases Flanders is a volunteer organization that has been committed to the general well-being of people with a neuromuscular disorder (NMA) since 1987. Colloquially, this group of conditions is often referred to as ‘muscle diseases’.
Arbeitsgruppe zur Förderung von Personen mit ADHS (ADAPT)
ADHDADHD, ASC & LD Belgium supports neurodivergent people of all ages and their families. We work with teachers, schools, and other professionals. We provide information about neurodiversity — which includes ADHD, autism, dyslexia, dysgraphia, dyscalculia, and dyspraxia (developmental coordination disorder) — and comorbid conditions.
Iktic-Jetique Iktic Tourettevereniging België vzw Jetique Association Tourette Belge asbl
Tics and TourettesBelgische Vereniging voor Dystoniepatiënten
DystoniaDystonia is a neurological disorder with a motor impact. The condition leads to abnormal muscle contractions, has many forms and is atypical due to a diversity of degrees of pain complaints. The consequences in terms of well-being and work cannot be underestimated. The condition means a revolution in life plans, both for the patient and the family. The Belgian Association for Dystonia Patients wants to be a point of contact, information sharer and forum to break the social isolation and unfamiliarity of the condition.
Werkgroep Hersentumoren
Brain TumorDo you have a brain tumor yourself? Or does your partner or family member have a brain tumor? Do you have questions or are you anxious? The Brain Tumors Working Group provides you with very comprehensive information in a clear and understandable manner. Good information contributes to making the right decisions in consultation with your doctors and enables better and faster processing.
Spierziekten Vlaanderen
Ataxia, Charcot-Marie-Tooth, Neuromuscular DisordersMuscle Diseases Flanders is a volunteer organization that has been committed to the general well-being of people with a neuromuscular disorder (NMA) since 1987. Colloquially, this group of conditions is often referred to as ‘muscle diseases’.
Arbeitsgruppe zur Förderung von Personen mit ADHS (ADAPT)
ADHDADHD, ASC & LD Belgium supports neurodivergent people of all ages and their families. We work with teachers, schools, and other professionals. We provide information about neurodiversity — which includes ADHD, autism, dyslexia, dysgraphia, dyscalculia, and dyspraxia (developmental coordination disorder) — and comorbid conditions.
Iktic-Jetique Iktic Tourettevereniging België vzw Jetique Association Tourette Belge asbl
Tics and TourettesBelgische Vereniging voor Dystoniepatiënten
DystoniaDystonia is a neurological disorder with a motor impact. The condition leads to abnormal muscle contractions, has many forms and is atypical due to a diversity of degrees of pain complaints. The consequences in terms of well-being and work cannot be underestimated. The condition means a revolution in life plans, both for the patient and the family. The Belgian Association for Dystonia Patients wants to be a point of contact, information sharer and forum to break the social isolation and unfamiliarity of the condition.
Werkgroep Hersentumoren
Brain TumorDo you have a brain tumor yourself? Or does your partner or family member have a brain tumor? Do you have questions or are you anxious? The Brain Tumors Working Group provides you with very comprehensive information in a clear and understandable manner. Good information contributes to making the right decisions in consultation with your doctors and enables better and faster processing.
Spierziekten Vlaanderen
Ataxia, Charcot-Marie-Tooth, Neuromuscular DisordersMuscle Diseases Flanders is a volunteer organization that has been committed to the general well-being of people with a neuromuscular disorder (NMA) since 1987. Colloquially, this group of conditions is often referred to as ‘muscle diseases’.
Arbeitsgruppe zur Förderung von Personen mit ADHS (ADAPT)
ADHDADHD, ASC & LD Belgium supports neurodivergent people of all ages and their families. We work with teachers, schools, and other professionals. We provide information about neurodiversity — which includes ADHD, autism, dyslexia, dysgraphia, dyscalculia, and dyspraxia (developmental coordination disorder) — and comorbid conditions.
Iktic-Jetique Iktic Tourettevereniging België vzw Jetique Association Tourette Belge asbl
Tics and TourettesBelgische Vereniging voor Dystoniepatiënten
DystoniaDystonia is a neurological disorder with a motor impact. The condition leads to abnormal muscle contractions, has many forms and is atypical due to a diversity of degrees of pain complaints. The consequences in terms of well-being and work cannot be underestimated. The condition means a revolution in life plans, both for the patient and the family. The Belgian Association for Dystonia Patients wants to be a point of contact, information sharer and forum to break the social isolation and unfamiliarity of the condition.
Werkgroep Hersentumoren
Brain TumorDo you have a brain tumor yourself? Or does your partner or family member have a brain tumor? Do you have questions or are you anxious? The Brain Tumors Working Group provides you with very comprehensive information in a clear and understandable manner. Good information contributes to making the right decisions in consultation with your doctors and enables better and faster processing.
Spierziekten Vlaanderen
Ataxia, Charcot-Marie-Tooth, Neuromuscular DisordersMuscle Diseases Flanders is a volunteer organization that has been committed to the general well-being of people with a neuromuscular disorder (NMA) since 1987. Colloquially, this group of conditions is often referred to as ‘muscle diseases’.
Arbeitsgruppe zur Förderung von Personen mit ADHS (ADAPT)
ADHDADHD, ASC & LD Belgium supports neurodivergent people of all ages and their families. We work with teachers, schools, and other professionals. We provide information about neurodiversity — which includes ADHD, autism, dyslexia, dysgraphia, dyscalculia, and dyspraxia (developmental coordination disorder) — and comorbid conditions.
Iktic-Jetique Iktic Tourettevereniging België vzw Jetique Association Tourette Belge asbl
Tics and TourettesBelgische Vereniging voor Dystoniepatiënten
DystoniaDystonia is a neurological disorder with a motor impact. The condition leads to abnormal muscle contractions, has many forms and is atypical due to a diversity of degrees of pain complaints. The consequences in terms of well-being and work cannot be underestimated. The condition means a revolution in life plans, both for the patient and the family. The Belgian Association for Dystonia Patients wants to be a point of contact, information sharer and forum to break the social isolation and unfamiliarity of the condition.
Werkgroep Hersentumoren
Brain TumorDo you have a brain tumor yourself? Or does your partner or family member have a brain tumor? Do you have questions or are you anxious? The Brain Tumors Working Group provides you with very comprehensive information in a clear and understandable manner. Good information contributes to making the right decisions in consultation with your doctors and enables better and faster processing.
Spierziekten Vlaanderen
Ataxia, Charcot-Marie-Tooth, Neuromuscular DisordersMuscle Diseases Flanders is a volunteer organization that has been committed to the general well-being of people with a neuromuscular disorder (NMA) since 1987. Colloquially, this group of conditions is often referred to as ‘muscle diseases’.
Arbeitsgruppe zur Förderung von Personen mit ADHS (ADAPT)
ADHDADHD, ASC & LD Belgium supports neurodivergent people of all ages and their families. We work with teachers, schools, and other professionals. We provide information about neurodiversity — which includes ADHD, autism, dyslexia, dysgraphia, dyscalculia, and dyspraxia (developmental coordination disorder) — and comorbid conditions.
Iktic-Jetique Iktic Tourettevereniging België vzw Jetique Association Tourette Belge asbl
Tics and TourettesBelgische Vereniging voor Dystoniepatiënten
DystoniaDystonia is a neurological disorder with a motor impact. The condition leads to abnormal muscle contractions, has many forms and is atypical due to a diversity of degrees of pain complaints. The consequences in terms of well-being and work cannot be underestimated. The condition means a revolution in life plans, both for the patient and the family. The Belgian Association for Dystonia Patients wants to be a point of contact, information sharer and forum to break the social isolation and unfamiliarity of the condition.
Werkgroep Hersentumoren
Brain TumorDo you have a brain tumor yourself? Or does your partner or family member have a brain tumor? Do you have questions or are you anxious? The Brain Tumors Working Group provides you with very comprehensive information in a clear and understandable manner. Good information contributes to making the right decisions in consultation with your doctors and enables better and faster processing.
Spierziekten Vlaanderen
Ataxia, Charcot-Marie-Tooth, Neuromuscular DisordersMuscle Diseases Flanders is a volunteer organization that has been committed to the general well-being of people with a neuromuscular disorder (NMA) since 1987. Colloquially, this group of conditions is often referred to as ‘muscle diseases’.
Arbeitsgruppe zur Förderung von Personen mit ADHS (ADAPT)
ADHDADHD, ASC & LD Belgium supports neurodivergent people of all ages and their families. We work with teachers, schools, and other professionals. We provide information about neurodiversity — which includes ADHD, autism, dyslexia, dysgraphia, dyscalculia, and dyspraxia (developmental coordination disorder) — and comorbid conditions.
Iktic-Jetique Iktic Tourettevereniging België vzw Jetique Association Tourette Belge asbl
Tics and TourettesBelgische Vereniging voor Dystoniepatiënten
DystoniaDystonia is a neurological disorder with a motor impact. The condition leads to abnormal muscle contractions, has many forms and is atypical due to a diversity of degrees of pain complaints. The consequences in terms of well-being and work cannot be underestimated. The condition means a revolution in life plans, both for the patient and the family. The Belgian Association for Dystonia Patients wants to be a point of contact, information sharer and forum to break the social isolation and unfamiliarity of the condition.
Werkgroep Hersentumoren
Brain TumorDo you have a brain tumor yourself? Or does your partner or family member have a brain tumor? Do you have questions or are you anxious? The Brain Tumors Working Group provides you with very comprehensive information in a clear and understandable manner. Good information contributes to making the right decisions in consultation with your doctors and enables better and faster processing.
Spierziekten Vlaanderen
Ataxia, Charcot-Marie-Tooth, Neuromuscular DisordersMuscle Diseases Flanders is a volunteer organization that has been committed to the general well-being of people with a neuromuscular disorder (NMA) since 1987. Colloquially, this group of conditions is often referred to as ‘muscle diseases’.
Arbeitsgruppe zur Förderung von Personen mit ADHS (ADAPT)
ADHDADHD, ASC & LD Belgium supports neurodivergent people of all ages and their families. We work with teachers, schools, and other professionals. We provide information about neurodiversity — which includes ADHD, autism, dyslexia, dysgraphia, dyscalculia, and dyspraxia (developmental coordination disorder) — and comorbid conditions.
Association Française du Syndrome de Gilles de la Tourette (AFSGT)
Tics and TourettesOur mission is to help patients and their families live with the disease, inform the teaching staff, encourage research at the national and international levels and encourage any action intended to improve the situation of its members.
Association Retina France
Retinal DiseaseCreated in 1984, Retina France is a non-profit association. Bring together people affected by eye diseases in order to inform them and provide them with social and humanitarian assistance. Helping families and patients overcome difficulties linked to their disability.
Association Française contre les Neuropathies Périphériques
Rare Immune-Mediated PeripheralThe AFNP is a recognized non-profit association that supports and promotes peripheral neuropathies in France and internationally, in order to enable each sick person to improve their quality of life.
Association France Parkinson
Parkinson’s DiseaseFrance Parkinson is an association founded in 1984 and recognized as being of public utility, which fights the disease on a daily basis alongside the people concerned. We work both at the national level through awareness and information actions as well as support for research, and at the local level, as close as possible to the needs of sick people, thanks to more than 600 volunteers spread across 82 committees. throughout France.
Association AMIS
Myasthenia GravisA source of information both on the disease and its impacts on everyday life. It is run voluntarily by members of the association, all patients or relatives of patients.
Ligue Française contre la Sclérose en Plaques (LFSEP)
MSSince 1986, the League has funded research programs and provided direct support to people affected by the disease. It brings together around forty local correspondents, 17 member associations and establishments. The League has also trained “Patient Experts” to raise awareness of this disease among the general public, the media, and in Regional Health Agencies.
Union de lutte contre la Sclérose en Plaques (UNISEP) / French League against Multiple Sclerosis
MS
Association Française du Syndrome de Fatigue Chronique (ASFC)
METhe French Association of Chronic Fatigue Syndrome is a non-profit association under the law of 1901, created in 1998 and approved at the national level by the Ministry of Solidarity and Health , since 2010, to represent users of the health system.
Ding Ding Dong – Institut de coproduction de savoir sur la maladie de Huntington
Huntingtons DiseaseInstitut de coproduction de savoir sur la maladie de Huntington
Huntington Espoir grand-est
Huntingtons DiseaseThe Huntington Avenir Association is a team that has worked since 1997 to support families affected by Huntington’s Disease.
Association Huntington France
Huntingtons DiseaseThe Huntington France Association (AHF) works to support people affected by Huntington’s disease and their families, but also to inform the medical and paramedical profession, raise awareness and raise awareness among public authorities. Beyond these missions, it actively contributes to research, notably through its scientific advice.
Association Française Contre l’Algie Vasculaire de la Face (AFCAVF)
HeadacheThe AFCAVF is an association which brings together people suffering from cluster headache. Its main goals are to help people who suffer from this headache, to act so that this disease is better known and better diagnosed and that medical research quickly leads to effective treatments.
Comité National pour L’Epilepsie
EpilepsyIn the interest of the people concerned and their families, the “National Committee for Epilepsy” promotes partnership between organizations dealing with epilepsies or epileptic people in France.
AMADYS
DystoniaCreated in 1987, AMADYS is a non-profit, general interest association , under the 1901 law, of people suffering from dystonia or hemifacial spasm. It brings together nearly 2,000 members including 80 delegates spread across France.
CMT France
Charcot-Marie-ToothCMT-France is a non-profit association. The CMT-France Association has been recognized as being of general interest since April 29, 2008. This association of patients with peripheral neuropathies, managed by patients or parents of patients, aims to break isolation by bringing together people suffering from CMT or similar neuropathies.
CSC (Connaitre les Syndromes Cérébelleux)
AtaxiaKnowing Cerebellar Syndromes (CSC) is a national non-profit association, open to all, more particularly to people suffering from a cerebellar syndrome, their families and carers.
AFAF (l’Association Francaise de l’Ataxie de Friedreich)
AtaxiaThe AFAF, French Association of Friedreich’s Ataxia , was created in 1980 and, since then, has been run and managed by volunteers, closely affected by the disease and who share the wish to help patients and facilitate the emergence treatments. It brings together more than 900 members. It relies on a scientific council and a medical and paramedical council, and ensures a partnership with other associations in France and around the world.
HyperSupers TDAH France
ADHDFrench association to help families, adults and children affected by Attention Deficit Hyperactivity Disorder (ADHD). HyperSupers – TDAH France was created in 2002, it is a Recognized Public Utility association by decree of June 18, 2019 and approved by the Ministry of Health since 2008 for the representation of users.
Suomen Tourette – ja OCD-yhdistys ry
Tics and TourettesUnbiased information about Tourette’s syndrome and obsessive-compulsive disorder (OCD), existing forms of treatment and support, as well as various events, trainings and peer groups affecting members of our association.
Aivoliito (Finish Brain Association)
StrokeAivoliitto works for the benefit of brain health and represents persons with a developmental language disorder or who have suffered from cerebral circulation disorder (AVH). We help and support our members to live a good everyday life.
Levottomat Jalat -Restless Legs ry
RLSUnilitto acts as a central organization connecting registered associations related to sleep and wakefulness disorders and sleep treatment. We otter help. support and information to those suttering from sleen disorders. and we promote the development ot treatment. We offer help, support and information to those suffering from sleep disorders, and we promote the development of treatment for sleep disorders and equal accessibility through advocacy. The purpose of our activities is also to increase general awareness of the impact of sleep and alertness on quality of life and mental and physical functioning.
Retina Ry
Retinal DiseaseRetina ry was founded in 1973 to monitor the interests of people with hereditary retinal degeneration, to promote research and treatment, and to act as a national link for people with these diseases and their loved ones. We are involved in the retinitis registry and our association has a research fund that grants grants to researchers in the field. Our operations are also supported by a group of experts consisting of doctors and researchers in the field.
Suomen Polioliitto Ry
Post Polio SyndromeThe association has 8 local organizations that organize diverse activities in their area of activity. There are approximately 3,500 members in the association, of which approximately 1,200 are polio sufferers.
Lihastautiliitto ry
Neuromuscular DisordersThe Muscular Dystrophy Association is a national disability organization whose goal is to support the right of people with muscular dystrophy to an equal, diverse and good life.
Neuroliitto
MSNeuroliitto is an organization for people with MS and rare neurological diseases and their relatives. The association promotes and supervises matters important to them in social decision-making and offers counseling, rehabilitation and housing services.
Suomen lääketieteellinen ME/CFS-Yhdistys ry
MESuomen lääketieteellinen ME/CFS-yhdistys ry (Finnish Medical ME/CFS Association) is a patient organization that was founded in October 2017. Our mission is to increase knowledge about ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) and to improve patient experience in the health care system.
Suomen Huntington yhdistis ry
Huntingtons DiseaseThe Huntington Association of Finland was founded in 1997 to improve family communication and patient care. Currently, the association has more than 100 members.
Migraine Association of Finland
HeadacheMigraine is the most common neurological disease in adulthood, with an estimated 700,000 sufferers in Finland. The Migraine Society is there for you when a migraine or headache disease touches your life. Don’t be alone – together we are more!
Epilepsialiitto
EpilepsyWe support the well-being of people with epilepsy and their loved ones during their different life stages and offer them peer support and activities. We also advocate for the cause and help prevent prejudice and discrimination.
Suomen Dystonia-yhdistys ry
DystoniaThe purpose of the Finnish Dystonia Association is to provide information about dystonia as a neurological disease and to support people suffering from the disease and their loved ones.
ADHD Liitto
ADHDWe are involved in social changes and develop new methods of operation. Courage is born from trust, cooperation and resource-focused encounters.
Eesti Parkinsoniliit
Parkinson’s DiseaseTartu Parkinson’s Disease Society (TPDS) is created in 1995. The Parkinson’s Disease Society has an important role for the patients and their carers as a source of the information about the disease and the treatment availabilities, and also as an organizer of the social activities and rehabilitation.
Eesti Lihasehaigete Selts
Neuromuscular DisordersThe Estonian Association of Muscular Disorders (EAMD) is a non-profit organization which aims to improve the living standards of people with muscular disorders.
Estonian MS Society
MSThe Estonian Association of Multiple Sclerosis Associations (ESMUL) gathers people with multiple sclerosis (MS), their relatives, support persons, support members and professionals through seven local patient organizations.
Dansk Tourette Forening
Tics and TourettesDanish Tourette Association is a national association for carriers of Gilles de la Tourette’s syndrome (TS) and their relatives. The association was started in 1984 and aims to help the members – spread knowledge of TS and disseminate experiences and results of research.
Muskelsvindfonden
Neuromuscular DisordersWe are the Muskelsvindfonden. We make things happen. By listening. By acting. By challenging. By taking chances. By inspiring. By shouting. By persevering. And above all: By standing together and creating space for differences and for the good life with muscular dystrophy.
Scleroseforeningen
MSThe Sclerosis Association is a patient association that is supported by around 55,000 members and contributors. We have been around since 1957.
The Huntington’s Disease Association
Huntingtons DiseaseThe National Association against Huntington’s Chorea was founded on 11 February 1984 on the initiative of doctors Sven Asger Sorensen and Helge Madsen and now deceased social worker Manon Lüttichau.
Migræne og Hovedpineforeningen
HeadacheMigræne & Hovedpineforeningen is an independent patient association for members with all types of migraine and headache. We disseminate information to the press, politicians and the public in general about the severe recurrent forms of headache.
Trigeminus Foreningen
HeadacheThe Trigeminus Association is a nationwide membership organization whose purpose is to spread awareness of the disorder trigeminal neuralgia and atypical facial pain, to encourage research into both the cause of the disease and the disorder itself, as well as support those affected by illness and their relatives with advice and guidance.
Danish Epilepsy Center
EpilepsyFiladelfia is Denmark’s only highly specialized hospital for patients with epilepsy. The organization also consists of a four-day neurorehabilitation center for people with acquired brain damage=and day care, a school, special counseling and an offer for Specially Tailored Education, STU.
Epilepsi Foreningen
EpilepsyThe Epilepsy Association’s overall purpose is to work to ensure that people with epilepsy are limited as little as possible in their living conditions. We are a nationwide voluntary association which was founded on 27 September 1962. The association currently has 6,000 members.
Dansk Dystoniforening
DystoniaDystonia is the term for involuntary tension in the muscles, which can result in abnormal movements and positions of body parts and limbs. The neurologists estimate that there are approx. 3,000 who are affected by dystonia in Denmark. The Danish Dystonia Association is a nationwide interest organization for patients and their relatives.
Foreningen for ATAKSI HSP
AtaxiaWe are the nationwide association for people with the rare diagnoses of Ataxia or HSP as well as their relatives and other interested parties.
ADHD Association
ADHDThe ADHD association is a voluntary organisation. The association only receives public funds in the form of grants and pools. So we need your support to be able to offer activities that benefit children, young people and adults with ADHD/ADD.
Cerebrum
StrokePatient non-profit organization bringing together citizens who have suffered brain damage (strokes, trauma, brain tumors or other damage), their family members and caregivers.
Sdruzeni CMP
StrokeThe Association for the Rehabilitation of Persons After Cerebrovascular Accidents (hereinafter referred to as the CMP Association) was founded in 1990. It is the only nonprofit organization in the Czech Republic that deals with comprehensive follow-up care for such sick patients.
Asociace Polio Ceské Republiky
Post Polio SyndromeThe Polio Association was founded on August 4, 1990 in Janské Lázne as an organization operating in the Czech Republic, bringing together persons affected by the consequences of poliomyelitis.
Parkinson-Help z. s.
Parkinson’s DiseaseParkinson-Help zs contributes to improving the quality of life of people with Parkinson’s disease in the Czech Republic
Společnost Parkinson, z.s.
Parkinson’s DiseaseParkinson, zs was founded in 1994 as a patient organization with nationwide scope. He gradually founds clubs in cities, where he supports group exercises as the main activity.
Iktic-Jetique Iktic Tourettevereniging België vzw Jetique Association Tourette Belge asbl
Tics and TourettesBelgische Vereniging voor Dystoniepatiënten
DystoniaDystonia is a neurological disorder with a motor impact. The condition leads to abnormal muscle contractions, has many forms and is atypical due to a diversity of degrees of pain complaints. The consequences in terms of well-being and work cannot be underestimated. The condition means a revolution in life plans, both for the patient and the family. The Belgian Association for Dystonia Patients wants to be a point of contact, information sharer and forum to break the social isolation and unfamiliarity of the condition.
Werkgroep Hersentumoren
Brain TumorDo you have a brain tumor yourself? Or does your partner or family member have a brain tumor? Do you have questions or are you anxious? The Brain Tumors Working Group provides you with very comprehensive information in a clear and understandable manner. Good information contributes to making the right decisions in consultation with your doctors and enables better and faster processing.
Spierziekten Vlaanderen
Ataxia, Charcot-Marie-Tooth, Neuromuscular DisordersMuscle Diseases Flanders is a volunteer organization that has been committed to the general well-being of people with a neuromuscular disorder (NMA) since 1987. Colloquially, this group of conditions is often referred to as ‘muscle diseases’.
Arbeitsgruppe zur Förderung von Personen mit ADHS (ADAPT)
ADHDADHD, ASC & LD Belgium supports neurodivergent people of all ages and their families. We work with teachers, schools, and other professionals. We provide information about neurodiversity — which includes ADHD, autism, dyslexia, dysgraphia, dyscalculia, and dyspraxia (developmental coordination disorder) — and comorbid conditions.
CMT Austria
Charcot-Marie-ToothCMT-Austria is an interest group for patients with inherited polyneuropathy. (Charcot-Marie-Tooth syndrome, CMT syndrome for short)
European Association of Myasthenia Gravis Patients’ Associations (EUMGA)
RLSEuropean Alliance of Neuromuscular Disorders Associations (EAMDA)
Neuromuscular DisordersEuropean Patient Organisation for Dysimmune and Inflammatory Neuropathies (EPODIN)
Rare Immune-Mediated PeripheralEuropean Association of Myasthenia Gravis Patients’ Associations (EUMGA)
RLSEuropean Alliance of Neuromuscular Disorders Associations (EAMDA)
Neuromuscular Disorders