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Improving Access to Care and Treatment for Huntingtons Disease Patients and Families
December 3, 2020
JOIN US FOR THE MULTI-STAKEHOLDER VIRTUAL ROUNDTABLE ON THURSDAY 3 DECEMBER 2020
VIRTUAL MEETING ON ZOOM – 14:00 –16:00 CET
REGISTER HERE BEFORE 1 DECEMBER
You are invited to a roundtable discussion bringing together a variety of stakeholders to highlight the sense of urgency required to ensure better access to care, services and treatment for all patients affected by Huntington’s Disease and other Rare Neurological Diseases.
Representatives of the European Huntington’s Disease Network (EHDN), the European Federation of Neurological Associations (EFNA) European Reference Network for Rare Neurological Diseases (ERN-RND), the European Brain Council (EBC), EURORDIS, and Members of the European Parliament will come together to discuss how they understand the challenges and unmet needs Huntington Disease patients face and how together we can ensure better access to care and treatment for all.
Some of the questions we will address include:
- WHAT ARE THE MAIN CHALLENGES?
- WHERE ARE THE OPPORTUNITIES?
- WHAT EU POLICIES CAN BE MADE TO MOVE US FORWARD?
Join us to contribute your own perspective and gain greater insight into the challenges faced across the Rare Neurological Disease field.