EFNA launches survey on the invisible issues of neurological conditions

The European Federation of Neurological Associations (EFNA) has today launched a survey to assess and quantify the invisible issues affecting neurology patients and caregivers in Europe.

The aim is to identify, measure and report on these invisible issues (for example pain, stigma, sleep problems, fatigue, movement issues or gender-related issues) as faced by those affected by neurological conditions, either as patients or caregivers. Data generated through this survey can be used to create awareness of these issues and to advocate for change to address them.

This survey is open to anyone over the age of 18 who is living with a neurological condition, or who is carer to someone living with a neurological condition, that resides in Europe. It is available in 8 languages: English, French, German, Spanish, Portuguese, Italian, Polish and Romanian.

Findings from the survey will be published on the EFNA website later this year, and included for presentation at the next meeting of the MEP Interest Group on Brain Health and Neurological Conditions.

The survey will be open until 30/08/2024.

Access the survey here

 


Kindly supported by Roche, Alexion and Merck