The official launch of the MEP Interest Group on Brain, Mind and Pain will take place on February 24th, 2015 at 18.00hrs in Brussels.
The group – a joint initiative of the European Federation of Neurological Associations and Pain Alliance Europe – will be co-chaired by MEPs Marian Harkin, Jeroen Lenaers and Daciana Octavia Sârbu.
The aim is to encourage research into and access to innovative treatments, promote prevention and self-management approaches, decrease stigma and work together to improve quality of life for people living with these disabling conditions.
To achieve these goals we are calling on European policy-makers – via the Institutions and Members States – to:
1. Support patient-led campaigns to educate, eradicate stigma and raise awareness of neurological and chronic pain disorders
2. Support research into the development of innovative prevention and treatment options within a regulatory framework which facilitates equitable access to affordable therapies
3. Strengthen patient involvement in this research, and in policy-setting and decision-making
4. Implement relevant European social legislation to ensure appropriate support for people living with neurological and chronic pain disorders
In advance of the launch EFNA and PAE are preparing a Book of Evidence which will outline why brain and pain disorders should be a political priority; highlighting the current challenges/barriers but also exploring possible solutions. This document will be presented and distributed at the launch with contributions from representatives of the aforementioned groups – including the President of the European Academy of Neurology, Prof. Gunther Deuschl.
There will be lots of time for networking, discussion and debate – so if you are interested in this topic please come along and contribute your expertise!
To register your attendance or for more information, please email euaffairs[at]efna.net