New Board Member – Arabela Acalinei

EFNA is delighted to welcome our newest Board Member- Arabela Acalinei. Arabela is President of the European Alliance of Neuromuscular Disorders Associations, whom she will represent on the board.

Arabela also serves as the President of Neuro Move CMT Association in Romania and is a Board Member of the European Charcot-Marie-Tooth Federation and their Eastern Europe Ambassador. In 2022, she became ePAG in EURO-NMD ERN, being involved in different working groups, and since 2024 she is part of the ERN’s Patient Advisory Board.

Arabela is herself a patient with Charcot-Marie-Tooth type 1A disease and has several members in her family with the same condition, her 2 sons included. Dealing with such a disease, ignited her passion for patient advocacy, particularly for individuals living with CMT and similar neuromuscular disorders.

In her professional life, Arabela is a Romanian-English teacher, translator, and professional trainer. Her educational background also includes trainings in Project Management and Career Counseling for people with disabilities.

She is a EURORDIS Winter and Summer School alumni, EUPATI fellow and a member of EURORDIS HTA Task Force. Moreover, in July 2023, she graduated the 5th Neuromuscular Translational School, organized in Leiden, Netherlands by EURO-NMD and TREAT-NMD.

Beyond her advocacy and professional pursuits, she is passionate about reading, learning, traveling and connecting to people.

We look forward to working with you Arabela!