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NEWS

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Global Huntington’s Disease Patient Advocacy Organisations Unite to Form Huntington’s Disease Coalition for Patient Engagement (HD-COPE)

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The European Huntington Association (EHA), Huntington’s Disease Society of America (HDSA) and Huntington Society of Canada (HSC) are proud to announce the formation of the […]

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Share your opinions & experiences of rare disease research

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Rare Barometer Voices– the EURORDIS survey tool that collects the opinions of rare disease patients, families and carers, is now open to participants around the […]

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Ensuring equitable access to high-quality treatment in brain, mind and pain disorders

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The next meeting of the MEP Interest Group on Brain, Mind and Pain will take place on November 22nd at the European Parliament in Brussels. […]

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TINA Workshop for Spanish Patient Organisations representing those affected by brain disorders

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Understanding and Influencing Healthcare Decision-Making Focus on: Health Technology Assessment Workshop for Spanish Patient Organisations representing those affected by brain disorders “Campus Diversia”, Yátova, Valencia, […]

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‘Caring for Carers’ – EPIONI hold workshop at European Parliament office in Athens

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The Greek Carers Network EPIONI was established in 2016 and is a member of  Eurocarers. One facet of EPIONI activities is the organisation of meetings, with the participation of […]

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European Pharmacists release Best Practice Paper on Pharmacovigilance and Risk Minimisation

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On the 26th September, the European Medicines Agency’s Pharmacovigilance Risk Assessment Committee (PRAC) held its first ever Public Hearing. Such Public Hearings are intended to […]

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EMA revises guidance on Clinical Trials

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The European Medicines Agency (EMA) has revised its guidance on first-in-human clinical trials to further help stakeholders identify and mitigate risks for trial participants. The revision takes into […]

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Brain, Mind and Pain Grant 2018 – Call for Proposals

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Bringing the innovation closer to patients, two leading organizations – Pain Alliance Europe and Grünenthal – are proud to introduce you to their 1st Brain, Mind, […]

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EMA survey on safety of medicines and reporting of adverse drug reactions

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Please find below a link to a survey from the European Medicines Agency (EMA) on adverse drug reaction reporting (side effects) and additional monitoring: https://ec.europa.eu/eusurvey/runner/EMA-survey-on-reporting-adverse-drug-reactions […]

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EHA organise Facebook Live event for European Migraine Day of Action

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UPDATE: If you missed the Facebook Live event you can watch it below. The European Migraine Day of Action will take place on Tuesday, 12th […]

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