Do you live with a neurological disorder, or care for a person who does?
If you are over 18 and live in Europe, please complete our survey and help us to identify the challenges facing all affected by neurological conditions, so we can work to address them.
Today, International Women’s Day 2022, the European Federation of Neurological Associations (EFNA) has launched a vital survey ‘Assessing diagnosis and care pathways of people living with neurological disorders in Europe‘.
Despite the higher prevalence rate in women than in men of many neurological disorders (e.g. multiple sclerosis, migraine, Alzheimer’s disease), gender stereotypes can have a negative impact, leading to underdiagnosis, misdiagnosis and delayed treatment. Furthermore, while women experience neurological disorders differently to men (symptomatic profile, pace of progression and effectiveness of medication), women are often excluded from research.
In addition to the experience of the patient, the majority of informal caregiving roles are occupied by women who are also burdened by the gender divide.
This survey has been developed with the aim of identifying, reporting and beginning to address the varied challenges facing all affected by neurological conditions, either as patients or caregivers, from diagnosis to care pathway. Data generated through this survey can be used to address the unmet needs and challenges facing all affected by neurological conditions.
The survey is open to anyone over the age of 18 who is living with a neurological disorder, or who is carer to someone living with a neurological disorder, that resides in Europe. It is available in 8 languages and is completely anonymous.
Findings from the survey will be published on the EFNA website later this year. Subscribe to our newsletter or follow us on Twitter, Facebook, Instagram or LinkedIn for updates.
CLICK HERE TO ACCESS THE SURVEY or access versions in multiple languages below: