Survey: The Invisible Issues of Neurological Conditions

Survey: The Invisible Issues of Neurological Conditions

This survey has been developed by the European Federation of Neurological Associations (EFNA) to assess and quantify the invisible issues affecting neurology patients and caregivers in Europe.

The aim is to identify, measure and report on these invisible issues (for example pain, fatigue, or gender-related issues) as faced by those affected by neurological conditions, either as patients or caregivers. Data generated through this survey will be used to create awareness of these issues and to advocate for change to address them.

This survey is open to anyone over the age of 18 who is living with a neurological condition, or who is carer to someone living with a neurological condition, that resides in Europe. It is available in 8 languages: English, French, German, Spanish, Portuguese, Italian, Polish and Romanian.

Findings from the survey will be published on the EFNA website later this year, and included for presentation at the next meeting of the MEP Interest Group on Brain Health and Neurological Conditions.

The survey will be open until 30/08/2024.

Access the survey here

Help spread the word about this survey!

We want to reach as wide an audience as possible, including people from as many European countries and affected by as many different neurological conditions as possible. The bigger the response, the higher the quality of the data we can produce.

Download our Survey Communications Toolkit to access a news release, social media message and graphics in all 8 languages.

Please share these resources with your network and encourage national organisations to promote the survey in their language!

Kindly supported by Roche, Alexion and Merck