#BrainLifeGoals Project Grant Winner 2020
We want to raise the bar of neurological care across the UK, so that every person with a neurological condition can get the treatment , care and support they need no matter where they live. Currently, there’s too much unwarranted variation – and it will get worse during and post COVID-19 crisis. There’s need to understand from the perspective of people with neurological conditions, how their treatment, care and support is being impacted by the crisis. Developing evidence of these impacts in a systematic way will be integral to our collaborative efforts to understand the crisis now and as we return to “tomorrow’s normal”.
Consequently, we propose to routinely collect and analyse primary quantitative patient reported data on this matter.
We will collect the data through a shared online platform, via a short survey questionnaire, for analysis and reporting. The evidence will be shared by National Neuroscience Advisory Group to local trusts and commissioners to promote service improvements.
“It is critical that the experiences of people with neurological conditions shape how we deliver care; this platform will enable us to do just that. “
“This is an exciting and much needed project that has the potential to support more effective, efficient service provision in neurology and beyond. It is critical that the experiences of people with neurological conditions shape how we deliver care; this platform will enable us to do just that. I fully endorse the project, and look forward to utilising this work as part of my role to drive forward transformation in neurosciences” – Prof. Adrian Williams, Chair NHS England Neurosciences Clinical Reference Group & National Neurological Advisory Group; Senior Advisor to the Getting it Right First Time (GIRFT) programme & London Ambassador; West Midlands Clinical Director Neurosciences & Chair of Senate.
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