My Voice Matters! – Integrating patient’s preferences in the healthcare agenda


From the 21-24 November 2017 EFNA participated in the ‘My Voice Matters’ exhibition at the European Parliament in Brussels. The exhibition was an initiative of Medicines for Europe.

The objective of the exhibition was to provide a platform for patient groups and representatives to raise awareness on their needs, the importance of a healthcare agenda, and how to integrate the patient preference within a range of therapeutic areas.

The exhibition featured information stands from EFNA, Value Added Medicines, Active Citizenship Network and the European Huntington Association (an EFNA member). EFNA used the opportunity on to further our work on access to employment.

Hosted by MEP Lieve Wierinck (ALDE, Belgium), the event was launched with a drinks reception on the evening of the 21st.

The overarching message from all groups is “my voice matters” – the need for patient centricity in healthcare & EU policy.