The International Brain Tumour Alliance (IBTA) is a global network founded in 2005 as a dynamic worldwide community for brain tumour patient organisations and others involved in the field of neuro oncology.
The IBTA brings together experience and expertise from all over the world with the aim of enhancing the well-being and quality of life of brain tumour patients and their families.
Across the globe in over 100 countries we work with Alliance supporters, prospective supporters, researchers, medical professionals, pharmaceutical and device companies, government agencies, regulators, medical societies, key opinion leaders, the media and others involved in the neuro oncology community to:
- encourage the establishment of brain tumour patient groups in countries where they don’t yet exist
- promote collaboration on programmes and projects to benefit the brain tumour community
- advance worldwide awareness of this disease by developing and promoting activities highlighting the challenges and needs of patients and carers
- disseminate knowledge, information and best practice
- help shape health and research policies at national and international levels
- celebrate the courage and achievements of brain tumour survivors and carers
Real change and improvement in health and support service design and delivery comes through involving people directly affected by brain tumours. Our aim is to bring together the international brain tumour community as a strong global voice urging governments, regulators and the research and medical communities to better understand the concerns and perspectives of people living with this devastating disease.
We place patients, their families and caregivers at the heart of all we do celebrating their courage and achievements, sharing knowledge and experiences and working together for progress. We encourage and support established brain tumour patient organisations; we do not aim to replace or supersede them.
By working together we identify collaborative actions across the international community and work towards our vision of a world free from the fear of brain tumours.
The 2020 edition of Brain Tumour Magazine is also available now.
Latest news from the IBTA:
Plain language summary for IBTA COVID-19 survey results published
Earlier this year, the IBTA announced the publication of its international survey on how COVID-19 was affecting brain tumour patients and their families during the first wave of the pandemic in the spring of this year. The survey, in seven languages, was done in collaboration with the Society for Neuro-Oncology (SNO) COVID-19 Task Force. A plain language summary has now been published, and is available to read here.