Dystonia Europe – #JumpforDystonia2020

Dystonia Europe

#BrainLifeGoals Project Grant Winner 2020

Jump for Dystonia 2020 is a relaunch of the successful dystonia awareness campaign that took place in 2015 involving thousands of people worldwide. The first edition of Jump for Dystonia focused on making dystonia better known and more heard of. People from all continents submitted all together more than 10 000 Jump photos.

For the 2020 edition, Jump for dystonia will be taken to a new level. The messages on dystonia will be extended in order to increase the awareness of dystonia and therefore help to speed up diagnosis and access to treatment to reach a better quality of life for dystonia patients.

A recent dystonia survey in Europe, with over 3000 participants, shows that over 40 % of dystonia patients waited between 3-10 years before correct diagnosis. There is an urgent need to improve knowledge of dystonia among the public and the medical profession in order to improve access to treatment for dystonia patients across Europe. This can be done by talking about it and JUMPING for it!

The current situation in the world fosters digital projects and an online campaign can have much greater results. We therefore present Jump for dystonia with a new twist!
There are many types of dystonias and that’s why we want to suggest several styles of jumpers. Also, not everyone has the possibility of jumping. These types will allow the involvement of people with limited mobility.

We will ask our followers: What kind of JUMPER are you? Penguin, star, freestyle, splash, grounded? Take a photo of your special Jump, post on social media and use the #jumpfordystonia2020 (to be able to track jumps by us) and #brainlifegoals (to support the EFNA campaign and increase engagement).

To track all photos with jumps on our social media channels, we will use the special hashtag and our social media expert will create a database with all photos / entries. To motivate and engage the community there will be 5 prizes for best Jumps:
1 – € 500, 2 – € 400, 3 – € 300, 4 – € 200, 5 – € 100

The digital campaign will be taking place:
– on our social media channels such as Facebook, Instagram, Twitter, Youtube, Linked-In
– with the support of our national member associations
– with industry partners and their staff
– with partner organisations such as EFNA, EBC, EPF

 

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