Speakers highlighted the broad clinical and socio-economic impact of epilepsy in Europe; drawing upon the results of IBE’s landmark Global Epilepsy Needs Study (which highlighted a need for urgent action on rare and complex epilepsies).Panelists, including EFNA Vice-President Arabela Acalinei, then examined how EU institutions and stakeholders can accelerate regional implementation of two key global frameworks to address the burden of epilepsy: The WHO Intersectoral Global Action Plan on Epilepsy and Other Neurological Disorders [IGAP] (2022–2031), and the WHO Resolution on Rare Diseases (2025–2034).

Spain’s EpiAlliance was presented as a best-practice case study on national implementation of IGAP; serving as a transferable model for other Member States.

This event united policymakers, clinicians, researchers, patient organisations, and people with lived experience to strengthen synergies between epilepsy and rare diseases, reduce disparities, and improve access to care.

Reflecting on the meeting, Elvira Vacas Montero, Chair of European Regional Executive Committee said: “The true value of a meeting like this is to remind us that epilepsy is not only a clinical or political issue, but a deeply human reality that touches the lives of millions of people and their families. And when we sit together —as we did in Brussels— the real possibility of driving meaningful change truly emerges.”