EFNA welcomed four new Members at our General Assembly 2013 – two Full and two Associate. Check-out our updated Members Directory or learn more about the following organisations below: European Mysathenia Gravis Association, International Bureau for Epilepsy, Pain Alliance Europe and Danish Trigeminal Neuralgia Association.
EUROPEAN MYASTHENIA GRAVIS ASSOCIATION
The European Myasthenia Gravis Association (EuMGA) is an International Organization, registered as a Charity July 22nd, 2009, under UK Laws.EuMGA has the aims to promote the health and welfare of sufferers from Myasthenia Gravis, Lambert-Eaton Myasthenic Syndrome, Congenital Myasthenic Syndrome and other similar diseases of the human neuromuscular junction and assist and encourage the formation and development of not-for-profit organizations of patients suffering from these diseases, and their carers, in the Countries of Europe.
EuMGA works with Patients groups in all European countries to promote the spread of best medical practice in the diagnosis and treatment of Myasthenia Gravis and related disorders, to improve the level of awareness and education of the medical profession, patients and public in all European countries( by publication and dissemination of translations of the best available published educational and publicity material, and the organisation of international conferences, and publicity campaigns).
EuMGA may fund research into the epidemiology of the diseases, with the objective of determining the influence of environmental factors on the incidence and prevalence of the disease throughout Europe. In this work the Association will co-operate with other charities and patients’ groups with compatible objectives.
INTERNATIONAL BUREAU FOR EPILEPSY
The IBE is an incorporated, not-for-profit, international organisation constituted in accordance with law and registered in the District of Columbia, USA. (Charter ID 721834-DNP). Founded in Rome in 1961, is the recognised international umbrella body representing national epilepsy organisations that have a specific interest in improving the social condition and quality of life of people with epilepsy and their carers.
IBE exists to improve the social condition and quality of life of people with epilepsy and those who care for them. There is no other similar credible organisation with the same broad Goals and Objectives or the same constituency of stakeholders as IBE.
IBE has a vision of the world where everywhere ignorance and fear about epilepsy are replaced by understanding and care and exists to improve the social condition and quality of life of people with epilepsy and those who care for them.
PAIN ALLIANCE EUROPE (Associate)
Chronic pain has a devastating impact on those who are suffering. Not only do they have a medical condition to contend with but the social and economic impact on the sufferers and on society is enormous. PAE’s mission is to improve the quality of life of people living with chronic pain in Europe, by promoting awareness for chronic pain, promoting an European policy on chronic pain and helping reduce the impact of chronic pain on the European society on all areas.
DANISH TRIGEMINAL NEURALGIA ASSOCIATION (Associate)
The Danish Trigeminal Neuralgia Association supports people suffering from this very painful condition with information, advice and an empathetic ear.
We collaborate with the Danish Headache Centre at Glostrup Hospital in Copenhagen, and further we participate in the Danish Patient Organisation for Headache and Facial Pain «Hovedpinesagen» (www.hovedpinesagen.com), a joint organisation between the Danish Migraine & Headache Association, the Horton Association and the Trigeminal Neuralgia Association.