Neuroscience Research & Development: Influencing, Engaging and Optimizing Opportunities for Patient Involvement

SAVE THE DATE

Tuesday, December 3rd and Wednesday, December 4th Brussels

Park Inn by Radisson, Brussels Midi: Place Marcel Broodthaers Plein 3, Brussels, B-1060

We would like to invite you to join us to help develop our strategy and approach to:

Promoting patient empowerment for increased and more meaningful involvement and engagement.

What?

Two-day workshop to:

  • Examine the challenges and gaps in patient involvement in neuroscience research.
  • Learn what initiatives are currently ongoing to support patient involvement and engagement in medicines development.
  • Share examples and best practice in involving patients in medicines development in neurology.
  • Discuss patient involvement and engagement across the medicines development continuum, including early, pre-clinical and clinical research and development (R&D) and regulatory and reimbursement processes.
  • Consider what is needed from the perspective of patients, patient organisations and the pharmaceutical industry to increase meaningful involvement in neuroscience research.
  • Decide how EFNA can build on what is already happening to ensure that patients, patient organisations and pharmaceutical companies can work together in developing medicines for neurological conditions across Europe.

Who?

Participants should be drawn from the neurology community and have a knowledge of the topic Patient and Public Involvement in medicines development. This may include previous training on the topic (e.g. via the European Patients Academy of Therapeutic Innovation [EUPATI]) or direct experience of working with researchers, the industry and/or regulators in the development and/or approval of medicines. Participants may be individual patients/carers or representatives of patient organisations.

We also welcome participants from the industry, research and health professional communities.

Speakers will include representatives from EFNA, the European Brain Research Area (consortia composed of the European Brain Council, Joint Programme on Neurodegenerative Disease, ERA-NET Neuron and the Human Brain Project) and the industry. We will also have representatives from IMI- PARADIGM and MULTI-ACT projects to present over the two days – as well as ‘patient experts’ to contribute their experiences and expertise!

How?

Please complete the registration form available here by November 25th: https://forms.gle/o9GFQ5wNwtp6wUt37

EFNA will cover two nights accommodation (2nd and 3rd) and provide a travel bursary of up to 250 euros per participant. For more information, email us here.

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