Patient Experience Survey: Participate or Circulate Today!


EFNA is launching a European survey on the impact of living with a brain disorder.

The aim is to:

– Find out how neurological disorders impact on the home, work/educational and social life of those affected

– Explore the association with related conditions/syndromes e.g. mental wellbeing, chronic pain, bladder and bowel disorders, sexual dysfunction etc.

– Assess the satisfaction rates with treatment and management.

The data generated with help EFNA to build a ‘Book of Evidence’ which will be taken to European policy and decision makers outlining why neurological disorders must be a political priority.

So, it is really important that we gather a significant number of responses to support our cause. The larger the number of countries and neurological disorders included, the more interest we will be able to generate amongst policy-makers in Europe!

Along with the overall results, we will also be publishing the data per country and per disorder. These will be made freely available to you after the launch for dissemination and use.

Your participation will ensure that your country and your disorder are represented in the advocacy materials we will prepare in advance of the launch of our: Member of the European Parliament [MEP] Interest Group on Brain, Mind and Pain.

The survey is multiple choice and should take less than 15 minutes to complete. It is available in: English, French, Spanish, Italian, German, Dutch, Finnish, Polish, Danish and Romanian. As well as newly added languages: Greek, Hungarian, Portuguese, Russian, Slovak, Slovenian and Swedish. Click on your language to access the survey online.

Please help us by circulating the link to this survey and encouraging your members, colleagues, family and friends to participate! We will also accept responses from carers who complete the survey on behalf of a person living with a neurological disorder who may be unable to do so themselves.

The survey will close on Friday, January 30th. We look forward to receiving responses from your country and your disease area, and sharing our results with you in mid-2015!