In celebration of World Brain Day 2018, EFNA has released results of its recent Survey of Young Europeans with Neurological Conditions.
Between March 12th and May 15th 2018, 1368 responses to the survey were received from 39 countries. Almost 80% of the respondents were female, with the majority of the responses coming from the below disease areas:
- Multiple Sclerosis
- Myalgic Encephalomyelitis
- Chronic Pain
The top concern cited by respondents was ‘access to medication/treatment’, followed closely by ‘isolation’ and ‘stigma’. This isolation and stigma could be attributed to the lack of public understanding of brain disorders.
Overall, respondents rated understanding of both brain disorders and their own conditions at 2.5/10. A lack of understanding was also clearly shown amongst family, friends and employers.
Information gathered from this survey will be used in the development of EFNA’s future workplans, ensuring that they and their member organisations are working in the best interests of those they represent.
You can read the complete survey report here: www.efna.net/efnayoungpeoplesurvey/
If you would like any additional information please do not hesitate to contact: