We would like to take the opportunity on this World MS Day to help raise awareness for people living with multiple sclerosis (MS) – especially our member organization – The European Multiple Sclerosis Platform (EMSP).
For more information about World MS Day check out the dedicated website at https://worldmsday.org/
EFNA Survey Results Relating to MS
- 87 % of people living with MS identified their symptoms themselves
- 42% of people living with MS received no encouragement to contact a doctor about their symptoms
- 25% of people had reservations about going to a doctor. Here are some of the themes taken from MS patient testimonies:
“I was afraid it would be labeled as overreaction”
“I didn’t know how to explain the symptoms”
“I didn’t think I was in a bad enough condition to go to the doctor”
- 1/3 of people living with MS felt they had to justify their visit to the doctor
“They blamed my symptoms as me being tired and a stressed out woman”“I felt like I was being gaslighted. Made to feel it was all in my head.”“Nobody listened”
Early diagnosis can support optimal living and prevent or delay for many people the devastating impact of MS.Yet 30% of people living with MS indicated they waited more than 1 year to receive a diagnosis.
- 2/3 of respondents indicated general practitioners do not know enough about MS.
Let’s raise more awareness about Multiple Sclerosis (MS) – not just today on World MS Day but every day.
For more information and help with Multiple Sclerosis contact EMSP so you can connect with an MS patient group.